There is an old Final Fantasy meme that comes from a translation error. In every Final Fantasy game, a character uses the insult, “You spoony bard!” The internet took off running with it, and so did my fiance when I was first diagnosed with Fibromyalgia in August 2019.
I was suffering for months and losing hope. Once, in one of our stay-in dates, we talked about what we would do if we could design a videogame. I suggested we create one about a girl whose power was music. In the beginning of the game, she loses her powers, but not her voice. The goal of the game is for her to take down an evil ogre and receive her powers back.
When I was diagnosed, my fiance suggested I start a blog called “The Spoonie Bard” to cheer myself up. When I asked why, he showed me the Final Fantasy meme on Know Your Meme.
Christine Miserandino’s famous “Spoon Theory” essay, in which Christine, diagnosed with Lupus, teaches her friend about life with a chronic illness using spoons at a restaurant. The friend was given twelve spoons, and for each action a spoon is taken away. It’s an excellent illustration for those recently diagnosed who wish to explain their new predicaments to their loved ones.
The Spoon Theory is where the term “spoonie” comes from. Spoonie refers to a person with a chronic illness. So my fiance, upon learning about the Spoon Theory from Jenny Lawson’s funny books, applied the meme to my situation – the falling star he had put in his pocket was applied to my starless night.
So, welcome to my blog, where I, the Spoonie Bard, offer you my pocket full of starlight, and all of its darkness too. Because let’s face it, chronic illness is hard.